He's about the size of a dollar bill

He's about the size of a dollar bill

Baby Jakes Weight!

March 18 - 430 grams (15 ounces)
March 19 - 385 grams (13 ounces)
March 20 - 406 grams
March 21 - 490 grams (he had a blood transfusion)
March 22 - 510 grams (due to transfusion)
March 23 - 480 grams
March 27 - 486 grams
March 28 - 498 grams
March 29 - 508 grams! Officially 1 lb on his own!
March 30 - 496 grams :o(
March 31 - 520 grams (he had a blood transfusion)

April 1 - 535 grams
April 8 - 590 grams
April 14 - 610 grams
April 20 - 682 grams
April 27 - 730 grams (1 lb 10 oz!!!!!!!)

May 1 - 795 grams (1 lb 12 oz!)
May 3 - 815 grams (we still can't hold him though)
May 10 - 1000 grams!!! A Whole Kilo!
May 17 - 1040 grams
May 25 - 1130 grams (Now we're really picking up speed)

June 7 - 1345 grams (3 pounds!!!)
June 10 - 1380 grams ( 3 pounds 2 ounces)
June 25 - 1500 grams (3 lbs 6 ozs - 500 more grams to go)

July 18 - 1940 grams ( 4lbs 5 ounces!!!)
July 25 - 2180 grams ( 4lbs 13 ounces)
July 31 - 2400 grams

Aug 7 - 2490 grams
Aug 12 - 2350 grams :o(
Aug 24 - 2913 grams ( 6lbs 7 oz) Whahooo!

Sept 8 - 3200 grams
Sept 15 - 3320 grams

Oct 10 - 4200 grams (9.5 pounds because of swelling!)

Wednesday, August 24, 2011

BYE BYE HERNIAS!

I'm getting ready to go to bed... we have a big day tomorrow and after talking to the surgeons tonight I now know that they feel like they have a big day ahead of them as well! Dr. Molitor, (a Primary Children's bowel surgeon), said that he has never seen hernia's like this before ever on a baby! SCARY!!! But he is confident that they will be able to fix these but we wont know the extent of the damage until they get him opened up and check it out. 


Some of the things they are worried about, first and foremost...


1. How are his lungs going to react to this surgery


2. How will his pulmonary hypertension react, and will his heart be able to handle it. 


3. Will the Hernia's be fixed forever after this. 


4. One of the things I am most worried about, and the Dr. confirmed my worries tonight, is how has his reproductive system been affected by this? Well Jake's Dr. was very honest by saying they were not sure if this has caused problems but that there is a very big chance that his testicles are not in the right spot and may have been extremely damaged in the process of these hernia's growth. He was pretty honest when he said there is a good chance he WILL have reproductive problems. I know this is not the end of the world and there are ways around this but I hope for his case that everything is in tact. 


5. The incision for the Silo bag will go across the tummy and will leave quite a scar, but mostly it will affect the inner muscles and there are worries about how his stomach muscles will handle this. Jake may require a few post surgery operations to go in and repair the areas that have to be sutured up with mesh and plastic materials. But the Dr.'s are confident that they wont be a big deal and 2 of the post-op surgeries can be done in the next 3 weeks, so before he ever leaves the NICU so that is good. 


6. Will he be able to get a G Tube (gastrointestinal feeding tube)? I HOPE I HOPE I HOPE!!! This means he might come home earlier with the G-tube in and I would be able to teach Jake how to bottle feed at home and then fill his tummy up with milk through the tube. They will not let me bring him home with the tube down his throat but I could if it is sticking out of his tummy (weird huh?) But I really hope this works out. 


I have a big day tomorrow, Rory did not feel comfortable asking for the 4th day of work off, so I will be going alone in the morning but Rory did ask for back to School night off (I was proud of him for that cuz he was nervous), so he should be there with me when Jake comes out of surgery. I'm kind of nervous! But mostly excited for this chapter to be over!


I have pictures of these hernias if anyone is interested. I do not feel comfortable posting them online because they are really quite disturbing to see, but if anyone is interested send me a text or email and I can email the pic to you. 


If you can say a special prayer for Jakey tomorrow. And throw my name in there at some point. I know all the prayers have been crucial for our family through this but mostly for Jake. 

4 comments:

  1. You and Jake will be in my families prayers all day tomorrow. As well as your family. Best of luck tomorrom. Remember you guys are loved!

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  2. WOW! I cannot believe everything this little guys has been going through. He is one tough fighter!!! Your family is in our prayers.

    I guess I should first introduce myself, my nams is Jessica, I am married to Coby Knudsen (reid and analee knudsen's son, from Mayfield), and I have been so inspired by your blog. You are such a strong individual. I am also a RN, so all of the medical stuff amazes me. I would love to see his hernias ( I have always been hoping you would post pictures) My email is knudsen42@hotmail.com. If you don't feel like sharing with a complete stranger too, I understand :) Best of luck with everything.

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  3. Lots of prayers for you guys!!! You're such amazing people.

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  4. Sorry to hear that the surgery was cancelled. :( I am anxious to hear what the whole reasons were. I was really hoping this part would be behind you guys now and that you could focus on bring him home. Hopefully they will get things all taken care of so they can get him fixed up soon. Will be praying for you all. I have't seen his hernias since he was pretty little so send me an email at merrilynn.sorenson@gmail.com

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