I wanted to put in a quick update. Jake is doing great! They are starting the process of weaning him off of his ventilator onto another less powerful ventilator which is great. He has a few weeks to go with that but at least there is progress. He is handling his feedings better now and they are actually getting bigger which is also great. He pooped two nights ago which is something I never thought I would celebrate so much in my life. I never knew how much our Intestinal system affected every other part of the body!
Jake has 2 massive hernias. So big in fact the nurses say they have never seen any get this big on a baby this small. The Dr's here at UVRMC do not perform bowel surgeries so they have been in contact with primary childrens and at this point the D's have all decided that he is too small and delicate to perform anything yet and they also think that the hernias look quite healthy as far as no kinks, or hardness. They are soft and can reduce back up into his belly quite easily. The problem that we are having with the is they hurt him when they get reduced but if they dont get reduced then gasses and poop are getting stuck down in them and it makes it harder and more uncomfortable for him to poop! Anyway, that is one of our major concerns right now.
Brookie and I are doing good! I can't thank all my wonderful friends and neighbors enough for all the love and support they have given to us. I couldn't have gone through this and mostly wouldn't be able to visit Jake without them!!! Thank you Thank you Thank you. And I love all my facebook messages that I get. Especially on rough days it is so nice to read all your comments, it reminds me that Rory and I are not alone in this.
If anyone knows of anywhere to find soft, button-up boy doll clothes let me know. Jake is to the point that as long as he doesn't have an IV in his hand he can wear a shirt, (although they look like dresses on him)!!! The poor little boy! His first room will have pink walls and his first outfit is a dress!!!
