Cross your fingers please!

Just got done with a meeting with Dr. Null, head neonatologist at Primary Children's. We came up with a game plan for the next 5 days. Now let's hope that Jake will follow this plan and not cause any excitement for the next 5 days! The plan is...


Jake is on a steroid that can be considered dangerous but it could also get him off of the ventilator (which is also very dangerous) so it's a catch 22. But he is on it and if he continues to do good on it and is working his way down to extubation onto a nasal canula, then the Hospital will transport Jakey back to Utah Valley at the end of this week!!! Utah Valley can continue to get him off the vents and help him learn how to eat. 


If by Wednesday he isn't improving that much, then he is on the operation schedule for Thursday morning to get a trach tube put in and after healing from that surgery then he will be transported back to Utah Valley for continued care. 


All of this is contingent on his ophthalmology appointment Wednesday morning. If the Retina Dr. is pleased with the condition of Jake's eyes she will give us the ok to get transported back, but if not then this whole plan goes to pot! So like I said cross your fingers that this is a quiet week. No 3 am phone calls, no bad blood labs, no drops in heart rates and everything else that falls in NICU categories! 


Also, the ward/neighborhood has really pulled through for us through all of this but we wanted to let everyone know how much we really appreciate everything. We're fasting for Jake on Sunday, we would love your continued prayers!