Jake is an amazing little boy. His respiratory therapist today said that he has a little temper and doesn't like to be messed with a lot :o)! I say Good for Him!!! I'm glad he is a bit feisty and let's people know when he doesn't like being messed with. He doesn't cry when he is bugged, he just furls his brow and his face turns bright red and then he clamps his little fists and starts swinging his arms around like he is going to knock someone out!!! I love it!
Monday morning I visited Jake like normal and everything seemed just fine. He had stopped getting milk through the feeding tube again because his belly was distended and his lungs get squished when that happens so they have to stop everything and let the belly relax. This is getting to be quite normal so I didn't think anything of it. But later that night I found out that the Dr.'s felt like they needed to intervene and get a specialists point of view, and in order to do that, Jake would have to be transported up to Primary Children's. This was not good news to me. I like it here and I have my schedule and routine and the thought of the rug getting pulled out from under me AGAIN was a lot to handle. I kind of lost it for a minute and went into panic mode of finding friends to help with Brookie and figuring out how I was going to make it to Cayden's play tomorrow, and figuring out how I would be back to Mayfield on Sunday in order to give my talk in Sacrament and figure out a hundred other changes I was going to have to make. Rory assured me it would be just fine but it's hard because he isn't up here, it's just me going back and forth twice a day and it's hard to get everything done each day without him.
Luckily... The specialist from Primary's went over all of Jake's films and notes Tuesday morning and decided that there really isn't anything they can even do for him at this point because he is too small, so in the end they all decided it would be best to leave him here until he grows a bit more. This doesn't mean that Jake will never go up there, it's just means that for now he is in a good place and they just need to keep trying to feed him so that his body can grow.
Well, that's about it for us right now. Thank you again to everyone who is helping us out through this crazy time!! Thanks for all the letters and cards and gifts, it means so much to us to have such wonderful friends and support! We don't know how to ever repay all the kindness we have received. You all are amazing!!!
