Jake is now officially 6 weeks old and for the most part has had a good week. He is finally growing a bit better now that he is able to get some milk through his feeding tube. He weighs a big fat 1 pound and 11 ounces which still sounds so little but when looking at him we can actually begin to see a difference. If you think about it, he has just about doubled his weight and size since he was born. And because their wasn't much to double it makes a huge difference.
Jake's lungs are still just an uphill climb. They have stabilized since Monday which is great news but they aren't as good as what we had hoped. But the Dr's are glad that he made some improvement and they hope with each dose of the steroid he will improve more and more. The hernia's are still the other big issue. We did have the specialist come and look at them. He and Dr. Gerday still agree that it would be to risky to fix his hernias and they don't think the operation would last long; that his flesh in his tummy is still too weak and it would just tear again creating two new hernias. So for now we wait!
Cayden and Brooke now have been able to see Jake which has been great! Brookie loves looking through the window and watching Jake. In fact we have to drag her away from it when we're there. Cayden was surprised at just how small Jake really is. He had a bit of a crash course with a doll to prepare him for all of Jake's tubes and I think it did help because he has seemed to calm down a bit when we talk about Jake. Sometimes I think Cayden is a bit too smart for his age. It really took some time to prepare Cayden for his sick little brother. He is really worried that Jake will be in a wheel chair or that he won't be able to play or talk. All we can tell him is that Jake is so strong right now and only time will tell but that everything looks good so far with his brain and body. I will be posting new pictures soon of Jake with Rory's wedding ring and a new dollar bill picture that we took.
I love the pictures with the Barbie and the basketball. :) What a little stud!
ReplyDeleteHurray for the weight gain and some stabilization in his lungs! Such great news! How fun for your family to have your other kids see Jake, I'm sure that was so much fun to watch them with their baby brother.
ReplyDeleteI LOVE LOVE LOVE the perspective photo with Jake and the Barbi doll. I'm sure that is one of those things he will look back on one day and understand just how small he is and what a miracle he is.
On a side note, I saw you tonight...I think...at the Dance Works Studio's recital. I was sitting across the isle and about 3-4 rows in front of you. Such a fun recital...LOVED the boys dance with the shorts and the suspenders! Hilarious! I had to leave early because my Paizlei was being a little stinker.